So Much to Say

My head is full of cat hair and nickels. Ping pong balls in an airplane hangar. I need something so much stronger than caffeine, but not illegal and not drain bamaging. I don’t know how I get through the days anymore. Autopilot has never been more helpful. It’s taken weeks of thinking about writing a blog post before I could actually do it. It’s not brain fog, more like brain muck. Brain clog?

This year. This year defies description. But I’m going to try to write down as much as I can remember - all the stuff we’ve been through in the past year. The stuff that happened before the world started ending.

At the moment, in another browser window, I’m looking at apartment listings in San Francisco. So many people are moving out of the city, rents are plummeting. We joked that maybe we could get my old place for a good price. I laughed, then said Let me check!

Of course we’d never move back to a studio apartment in SF. Not with five cats and a bird. But SF is my one true home and I miss it more than I ever imagined I would. I watch shows/movies/videos shot in SF and get weepy about being so far away.

When we moved to Bend last year, we never could have imagined what was coming. We were in the midst of so many of our own changes, much was already a blur. One minute we were in the Bay Area thinking about maybe eventually relocating to Bend, the next we were here, buying a house and trying to think about what the next 5-10 years might be like.

Shortly after we settled in, my dad had triple bypass surgery - doing well now, thankfully. Then my mother had her second bout of breast cancer - this time a more invasive variety - and another surgery, seemingly getting it all in one go. No chemo or radiation - all seems fine.

Then David moved the (very heavy) coffee table with a strange posture and blew out a disc in his lower back. He’d done something similar to his neck years before, but this was different. The pain was so bad we had to get to the ER to get it under control. Worst day of our lives. I’ve never felt that kind of stress before. (He eventually got a cortisone shot and that seemed to do the trick - so far, so good.)

Soon after his back exploded, the herpes virus that’s lived dormant in my body for 25+ years (thanks, ex husband) triggered something called Erythema Multiforme (EM). Never heard of it? I hadn’t either, until I saw a dermatologist who knew what it was.

It started with canker sores inside my mouth - all over. When eating anything, my mouth felt like it was full of broken glass. Then I developed painful red spots on my hands and feet. They were painful to the touch, but never blistered. Both thumb and index finger nail beds were red and inflamed. On the advice of a local nurse, I went to Urgent Care. They had no idea what it was, but prescribed anti viral meds. That knocked it down pretty quick. But it wasn’t too long after that it was clear I was going to lose some finger nails. That took months.

So, EM is not HSV I or II, but can be triggered by those infections (and others). Now I have this whole other thing living inside my body that has to be managed, if it reoccurs. Along with Epstein Barr Virus (EBV), which might be reactivated, thanks to the stress of 2020.

On top of all that, we’re doing our best to avoid COVID-19, if we haven’t already had it, because of course there’s no way to know. No good antibody tests exist yet, and even if they did, we may not retain antibodies long enough to show up on a test! And maybe that’s another virus that lives inside your body forever that will have to be managed somehow.

Is it possible for one virus to kill off other viruses in your body? Probably wouldn’t feel very good, but that would simplify things.

2020 has felt like 5-10 years in the span of 9 months. There’s no way to plan for the future at this point. But somehow we made this move at the best possible time to avoid the Bay Area exodus and the extreme lack of housing inventory in Bend. Our realtor said that for the first time, she’s having trouble finding homes for clients and she’s seeing multiple offers, with homes selling in a day or two instead of weeks.

So, while I dearly miss my one true home in San Francisco, I’m glad we’re here in our own little semi-rural bubble where we can ride out the rest of 2020 and hope 2021 brings better days.

Upcoming posts I want to remember to write about:

  • EBV - I’ve learned some things I want to pass along that could be life changing. I know - terrible teaser, and it’ll be the next thing I post.

  • Hypothyroidism - specifically, sub-clinical hypothyroidism - maybe related to EBV, maybe peri menopause, but it’s happening again.

  • Peri menopause - the five Ws I’m using that have helped me, because of course that really got going this year, and why not? Now I know what hot flashes feel like. Pretty interesting.

  • Eczema - I seem to have cured mine - and that’s an important distinction - there is no single universal cure - you have to figure out how to cure yours, in your own way.

  • Fasting - one tidbit I recently learned about intermittent fasting that was a huge light bulb moment for me.

  • Plant-based diet - why we made the switch and what we’ve noticed (spoiler alert - it’s related to what cured my eczema).

Stay safe and be well.

Hyper Hypo

Friggin germs. Now my cold has moved from my throat up into my nose. I'm a snot fountain. Font of snot. Sorry about all that hot, sexy stuff about my snot. Anyway...

I read an article today in the latest Elle about hypothyroidism, which was great to see in a national mag, but still disappointing in that after all this time, after what seems like enough fuss made over the past few years, it still gets little attention and is largely considered by most doctors to be a fictitious disease.

Alternatively, it's been called a "woman's disease," and thus won't ever get the attention it deserves, not like say, erectile dysfunction. It was discouraging to read about women mentioned in the article struggling with the same ignorant doctors I had - doctors ready to hand me bagfuls of Paxil samples rather than do one simple (and inexpensive) thyroid blood test.

How in the hell, after all those years of study and toil, can you end up so cavalier about treating a patient? How, after all the shit you must have to learn in those 8 years of school and whatever else you have to do, so easily dismiss a laundry list of symptoms that are so obviously, or at least possibly, related to thyroid malfunction? Vets diagnose and treat cats with thyroid problems faster and with greater accuracy than most doctors.

I can't imagine what I'd have gone through if I hadn't had access to the Internet to do the research I did years ago. I saw two doctors - both women - and after rattling off my list of symptoms, they both wanted to immediately put me on Paxil without any tests of any kind. That was their answer. Well done, nice work ladies.

After the visit to the second doctor I went home and tried to research the legal ramifications of getting caught writing my own prescriptions. During that research I found a way to buy natural thyroid hormone replacement on the Internet. And so I did. It was amazing. In three days I started to feel better.

After months of debilitating fatigue, always feeling cold, apathy (not depression), constant, gradual weight gain, not remembering shit, missed periods (which never happens), constipation (which also usually never happens), and other symptoms -- in three days, that all started to change.

And that was on the very lowest dose. Just that much, a 1/4 grain a day, made me start to feel normal again. Placebo effect you might think? Placebos don't generally cause ovulation. Sure, it could have been coincidental timing, but likely not.

At some point I was able to get my lab records for the years prior to this experience and saw that, sure enough, my TSH number had been steadily rising every year. I didn't even know they were testing for it at the time, and it would seem they didn't either because no one said shit about it. And it proved once & for all, I wasn't crazy. They'd rather you think you're crazy than do anything to help you to find out what's going on.

So for any women out there reading this, if you're 30 years old or over, start testing your thyroid levels now, and check them every year, and keep track of the NUMBER. Do not accept "normal" or "in the normal range."

The "normal" range is different for each lab, and some labs have still not adjusted to the updated range. The old "normal" range was .5 to 5.0. Today, anything above 2.0 could be considered too high.

Some women say they feel OK even if their TSH number is in the hundreds, while other women report feeling horrible when it's just below 10. Listen to your body, trust your instincts and do your own research. Be your own doctor. Meanwhile, if you need Rx pads, I know someone who can help you out with that.

One of the best books on thyroid is by Broda Barnes - Hypothyroidism, The Unsuspected Illness. That, and Mary Shomon's book, Living Well With Hypothyroidism are the best resources out there besides what you can find online. Be well, girls.